It has been such a joy watching the nurses grow more and more attached to Jonah as the days have gone by. They are just so good with him, so gentle. They have made us feel more confident at Jonah's bedside also. Now we are encouraged to touch him, we can tuck him into his little blanket and I was even able to rub some lotion into his scaly hands and feet today. It feels so good to be able to do something, anything for him during these days and weeks. Our hearts overflow with love for this little boy and we want more than anything for him to know that he is not going through this alone.
Each time we leave for the night, we say our prayers of thanks with Jonah for all of the days blessings. We feel a sense of peace walking out knowing that even though we are going home to rest, God is settling in to watch over Jonah, his doctors and his nurses.
Plan for tomorrow...tentatively:)
1. Stop Epinepherine infusion
2. Pull another central IV, the one in his left femoral artery (the other was already pulled out)
3. Remove 1 of 3 chest tubes
4. Feeding small drips of breastmilk through the NG tube
These are big moves!!