Jonah did great for his first car ride. He slept most of the way, but by the time we were pulling into our neighborhood, he was fussin'. And the fussin' didn't stop. We were quickly overwhelmed with trying to sooth and feed Jonah, unpack and get organized around the house. Before we knew it, it was 7pm and we realized we hadn't eaten all day. Luckily reinforcements, Jonah's grandparents, showed up just in time with dinner and a helping hand. Jonah quickly behaved for his company, sleeping soundly the entire time. Unfortunately, that would be the last time he would sleep the rest of the night. Mom was up all night with him. Dad got a couple hours of sleep, but often interrupted.
The schedule just doesn't allow for sleep. Jonah needs feedings every 3 hours. It's a 2 man operation at this point. One of us consoling Jonah and keeping him calm, and the other holding up the syringe elevated at the right height to control the speed in which the milk runs through the NG tube and into Jonah's stomach. Each feeding takes 30-40 minutes to administer. Then there's the milk preparation, the cleaning, the diaper changes, Mom's pumping, giving the meds...and by then it's time to feed again.
Currently we have 2 challenges:
- 1 in every 3 meals has been ending in a spit up/throw up. We're still trying to figure it out, but it seems like something is causing an upset stomach. We have a couple theories and are just trying different tactics. It might be the formula (which is added to the breast milk for extra calories). Each time we've skipped the formula, Jonah has kept every drop down. It could also be the timing of the Reglan.
- Keeping Jonah calm and happy. Jonah's heart is still healing, so it's important to calm him down the minute he starts to fuss. We understand he's a baby...and babies cry, however when Norwood babies get too worked up it causes unwanted blood flow and pressure in the lungs and can make for further distress.
|My first bath|
|My Radio Flyer ride to step down room|
|Hit the gas daddy, we're going home!|