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Friday, October 12, 2012


We received the good news this morning; Jonah's fluid around his lung was gone and his blood work was acceptable enough (low INR, low potassium) to go home! From then on, the day was a whirlwind of medication orders, pulling of Jonah's last IV, flu shot, packing, and checking out of the RMDH.

Jonah was happy to be in his car seat and immediately started pointing out all the trucks and buses he could find. But the excitement got the best of him and he was quickly asleep and slept the rest of the way home. Taking advantage of Jonah's nap, Stacie unpacked a bit and got organized once we got home while Rob stayed with a sleeping Jonah in the car running in the driveway. When we finally woke him up to tell him where he was, Jonah was all smiles. We sat him on the couch, turned on a favorite movie and let him wake up before having to cram the next round of meds down him. After a good snack, Jonah was ready to get down and play on the floor with his cars. It takes two people to get anything done now that he is connected to a the oxygen tank. Speaking of oxygen, Home Care dropped off more oxygen equipment and now we have half a dozen oxygen tanks and a giant electric beast that is the size of a mini-fridge hooked up in his bedroom.

After visits from our wonderful neighbors and Gaga and Papa, it was once again time for another round of meds, and before we knew it, bed time. He fell asleep in record time back in his old bed. Hopefully we all can get a full night's sleep. We have grown so accustomed to the 12pm, 2am, 4am, 5am, 6am vitals, labs, X-rays, meds, etc that we don't remember what a uninterrupted night of sleep is.

Check out the bag full of meds we had to pick up in the pic below.

1 comment:

  1. Hey Stace! Just finally logged into my work email and found the link for your blog! I've been anxiously awaiting news about Jonah and now that I'm all caught up...WOW! What a month it has been for you guys. I'm so so glad that he is doing so well...the pictures are so freaking cute :) and his color looks fantastic!! Anyway, just wanted you to know that I've been thinking about and praying for you guys...hugs from me, and baby Eli!! Love, Rach
    PS...thank you SO much for the gifts that arrived in the are too thoughtful!! Eli can't wait to play with them!! xoxo