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Monday, October 1, 2012

Day 1 in the books

The day flew by and we are glad it's almost over. It's a huge relief to have this day behind us.

He flew through surgery faster than we expected. Thankfully they didn't have to do the fenestration (sp). He looked great when we finally got to see him, a little dusky, but not nearly as swollen as the first two surgeries. Since then it's been a fight to keep him resting peacefully. Within an hour of being with him he was trying to get up on all 4s and, in his groggy voice, asking to play with cars and of course for us to hold him. The nurses are trying to give him the right balance of narcotics without compromising other aspects of his recovery. So it's trial and error at this point. Each time he wakes up its a chaotic scene trying to help him get relaxed and comfortable without pulling out the dozens of tubes and wired he needs to be connected to. It's heart wrenching to see him writhe around and get tangled in all the crap he is hooked up to. And the more you have to untangle him, the more you have to delicately move him, and the more pissed he gets. Then repeat. We wish they could just sedate him so he would sleep straight through the next week, but that can't happen. Stacie and I are going to try shifts, where we rotate sleep at RMDH for a couple hours and then relieve each other. Stace has been a champ so far, but we have still a long road to recovery ahead and sleep and rest is going to be hard to come by.

We will post more details tomorrow but before I sign off, I want to thank all our friends and family for their support today. All the kind messages and prayers were overwhelming. At one point while in the waiting room it felt like half the room was filled with Team Jonah supporters and it really helped to pass those anxious hours while he was under the knife. It means so much to us and we are blessed to have such caring and kind friends and family in our lives. Thank you, we couldn't do this without you guys.


  1. Woohoo! Officially post Fontan! Aly was the same way after surgery- I remember being completely shocked when just hours after surgery she flipped over and tried to crawl. Praying for a smooth and swift recovery for Jonah!

  2. Wishing Jonah a speedy recovery!

  3. Glad to hear that the surgery went smoothly and he is doing well. Hope he recovers fast!

  4. Still praying for Jonah's smooth recovery and for you guys to get as much rest as possible so you can care for him as well. Let me know if you need anything, we are 15 min away from the hospital.