Jonah and the Whale: No Discharge

Wednesday, October 10, 2012

No Discharge

More fluid built up in Jonah's right lung. We have been advised to stay for at LEAST 2 more days.

So hard. So sad.

1 comment:

RainaOctober 11, 2012 at 2:53 PM
So sorry about the excess fluid! Continuing to pray that his body heals and he gets rid of the fluid quickly. Sending lots of positive energy, love and light to all of you! Hang in there!
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Our Story

We (Rob and Stacie) are expecting our first child in early August: a baby boy we've named Jonah. During our routine 20ish week ultrasound, we discovered our son has a very serious and rare heart defect known as Hypoplastic Left Heart Syndrome (HLHS). We moved from Minneapolis to Chicago in January 2010. In the process we both started new jobs with new employers, sold our house in Minneapolis, bought a house in Chicago; all the while learning, coping and preparing for Jonah's arrival. This blog is to help share our journey with our wonderful friends and family and to be a portal to other families who may be dealing with HLHS, either from experience or for the first time.

A Little Story About HLHS

It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus 'I don't want to leave, I like it here, and I will miss you'. Jesus reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down, and says, 'How about if you leave half of your heart here with me and take the other half with you, will that be okay?' The angel smiles and says, 'I guess that will work'. But the little angel is still a little scared. He asks, 'Will I be okay with only half of my heart?' Jesus replies, 'Of course you will, I have other angels there that will help out, and you will be fine.' Then Jesus gives the angel more details about his plan. He says 'When you are born, your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family, play and laugh everyday, And when it is time to come back to heaven, I will make your heart whole again. Always remember that you are not broken, just torn between two loves.'

How old am I?

Wednesday, October 10, 2012

No Discharge

1 comment:

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