We're back home! It was a long day of waiting around, but we're finally here. There's half of us that feels like our skin was crawling we wanted to get home so bad, but then there is the other half that feels eternally guilty for such a short stay. There are too many families still there who would kill to be in our place. To see and experience what happens day in and day out at a childrens' hospital will forever make you see the world with a different perspective.
Jonah is doing really good. His EKG and Echo looked great. However he's got the typical Glenn headaches and pain, and on top of his standard issue angry 'tude, you've got the perfect storm for an inconsolable baby. Fortunately we were able to convince the docs that we needed to be sent home with phenobarbital, most commonly used as a sedative to relieve anxiety. He had a couple doses when he was in the step-down unit and it really just helps him relax and be content when awake. It doesn't knock him out or make him all stoned or anything, rather he's happy and playing, so we really feel it takes the edge off him perfectly.
That's my quick update for tonight. Stacie and I are both exhausted, and we're desperate for a good night's sleep in our own bed.